Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

Álvaro Bejarano-Martín; Ricardo Canal-Bedia; María Magán-Maganto; Clara Fernández-Álvarez; María Victoria Cilleros-Martín; María Cruz Sánchez-Gómez; Patricia Garcia Primo; Mary Rose-Sweeney; Andrew Boilson; Renata Linertová; Herbert Roeyers; Sara Van der Paelt; Diana Schendel; Christine Warberg; Susanne Cramer; Antonio Narzisi; Filippo Muratori; María Luisa Scattoni; Irma Moilanen; Anneli Yliherva; Evald Saemundsen; Sigríður Loa Jónsdóttir; Magdalena Efrim-Budisteanu; Aurora Arghir; Sorina Mihaela Papuc; Astrid Vicente; Celia Rasga; Bernadette Rogé; Quentin Guillon; Sophie Baduel; Johanna Xenia Kafka; Luise Poustka; Oswald D. Kothgassner; Rafal Kawa; Ewa Pisula; Tracey Sellers; Manuel Posada de la Paz

doi:10.1007/s10803-019-04253-0

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

Álvaro Bejarano-Martín, Ricardo Canal-Bedia, María Magán-Maganto, Clara Fernández-Álvarez, María Victoria Cilleros-Martín, María Cruz Sánchez-Gómez, Patricia Garcia Primo, Mary Rose-Sweeney, Andrew Boilson, Renata Linertová, Herbert Roeyers, Sara Van der Paelt, Diana Schendel, Christine Warberg, Susanne Cramer, Antonio Narzisi, Filippo Muratori, María Luisa Scattoni, Irma Moilanen, Anneli YlihervaEvald Saemundsen, Sigríður Loa Jónsdóttir, Magdalena Efrim-Budisteanu, Aurora Arghir, Sorina Mihaela Papuc, Astrid Vicente, Celia Rasga, Bernadette Rogé, Quentin Guillon, Sophie Baduel, Johanna Xenia Kafka, Luise Poustka, Oswald D. Kothgassner, Rafal Kawa, Ewa Pisula, Tracey Sellers, Manuel Posada de la Paz

Clinical Research Institute for Developmental Medicine

Research output: Contribution to journal › Article › peer-review

Abstract

Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents’ opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child’s age, delays in accessing services, and active stakeholders’ participation when looking to improve services.

Original language	English
Number of pages	15
Journal	Journal of Autism and Developmental Disorders
DOIs	https://doi.org/10.1007/s10803-019-04253-0
Publication status	Published - Oct 2019

Fields of science

302 Clinical Medicine

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1007/s10803-019-04253-0

Cite this

Bejarano-Martín, Á., Canal-Bedia, R., Magán-Maganto, M., Fernández-Álvarez, C., Cilleros-Martín, M. V., Cruz Sánchez-Gómez, M., Garcia Primo, P., Rose-Sweeney, M., Boilson, A., Linertová, R., Roeyers, H., Van der Paelt, S., Schendel, D., Warberg, C., Cramer, S., Narzisi, A., Muratori, F., Scattoni, M. L., Moilanen, I., ... Posada de la Paz, M. (2019). Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-019-04253-0

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title = "Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives",

abstract = "Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents{\textquoteright} opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child{\textquoteright}s age, delays in accessing services, and active stakeholders{\textquoteright} participation when looking to improve services.",

author = "{\'A}lvaro Bejarano-Mart{\'i}n and Ricardo Canal-Bedia and Mar{\'i}a Mag{\'a}n-Maganto and Clara Fern{\'a}ndez-{\'A}lvarez and Cilleros-Mart{\'i}n, {Mar{\'i}a Victoria} and {Cruz S{\'a}nchez-G{\'o}mez}, Mar{\'i}a and {Garcia Primo}, Patricia and Mary Rose-Sweeney and Andrew Boilson and Renata Linertov{\'a} and Herbert Roeyers and {Van der Paelt}, Sara and Diana Schendel and Christine Warberg and Susanne Cramer and Antonio Narzisi and Filippo Muratori and Scattoni, {Mar{\'i}a Luisa} and Irma Moilanen and Anneli Yliherva and Evald Saemundsen and J{\'o}nsd{\'o}ttir, {Sigr{\'i}{\dh}ur Loa} and Magdalena Efrim-Budisteanu and Aurora Arghir and Papuc, {Sorina Mihaela} and Astrid Vicente and Celia Rasga and Bernadette Rog{\'e} and Quentin Guillon and Sophie Baduel and Kafka, {Johanna Xenia} and Luise Poustka and Kothgassner, {Oswald D.} and Rafal Kawa and Ewa Pisula and Tracey Sellers and {Posada de la Paz}, Manuel",

year = "2019",

month = oct,

doi = "10.1007/s10803-019-04253-0",

language = "English",

journal = "Journal of Autism and Developmental Disorders",

issn = "1573-3432",

publisher = "Springer US",

}

Bejarano-Martín, Á, Canal-Bedia, R, Magán-Maganto, M, Fernández-Álvarez, C, Cilleros-Martín, MV, Cruz Sánchez-Gómez, M, Garcia Primo, P, Rose-Sweeney, M, Boilson, A, Linertová, R, Roeyers, H, Van der Paelt, S, Schendel, D, Warberg, C, Cramer, S, Narzisi, A, Muratori, F, Scattoni, ML, Moilanen, I, Yliherva, A, Saemundsen, E, Jónsdóttir, SL, Efrim-Budisteanu, M, Arghir, A, Papuc, SM, Vicente, A, Rasga, C, Rogé, B, Guillon, Q, Baduel, S, Kafka, JX, Poustka, L, Kothgassner, OD, Kawa, R, Pisula, E, Sellers, T & Posada de la Paz, M 2019, 'Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives', Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-019-04253-0

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives. / Bejarano-Martín, Álvaro; Canal-Bedia, Ricardo; Magán-Maganto, María et al.
In: Journal of Autism and Developmental Disorders, 10.2019.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

AU - Bejarano-Martín, Álvaro

AU - Canal-Bedia, Ricardo

AU - Magán-Maganto, María

AU - Fernández-Álvarez, Clara

AU - Cilleros-Martín, María Victoria

AU - Cruz Sánchez-Gómez, María

AU - Garcia Primo, Patricia

AU - Rose-Sweeney, Mary

AU - Boilson, Andrew

AU - Linertová, Renata

AU - Roeyers, Herbert

AU - Van der Paelt, Sara

AU - Schendel, Diana

AU - Warberg, Christine

AU - Cramer, Susanne

AU - Narzisi, Antonio

AU - Muratori, Filippo

AU - Scattoni, María Luisa

AU - Moilanen, Irma

AU - Yliherva, Anneli

AU - Saemundsen, Evald

AU - Jónsdóttir, Sigríður Loa

AU - Efrim-Budisteanu, Magdalena

AU - Arghir, Aurora

AU - Papuc, Sorina Mihaela

AU - Vicente, Astrid

AU - Rasga, Celia

AU - Rogé, Bernadette

AU - Guillon, Quentin

AU - Baduel, Sophie

AU - Kafka, Johanna Xenia

AU - Poustka, Luise

AU - Kothgassner, Oswald D.

AU - Kawa, Rafal

AU - Pisula, Ewa

AU - Sellers, Tracey

AU - Posada de la Paz, Manuel

PY - 2019/10

Y1 - 2019/10

N2 - Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents’ opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child’s age, delays in accessing services, and active stakeholders’ participation when looking to improve services.

AB - Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents’ opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child’s age, delays in accessing services, and active stakeholders’ participation when looking to improve services.

UR - https://www.ncbi.nlm.nih.gov/pubmed/31606886

U2 - 10.1007/s10803-019-04253-0

DO - 10.1007/s10803-019-04253-0

M3 - Article

SN - 1573-3432

JO - Journal of Autism and Developmental Disorders

JF - Journal of Autism and Developmental Disorders

ER -

Bejarano-Martín Á, Canal-Bedia R, Magán-Maganto M, Fernández-Álvarez C, Cilleros-Martín MV, Cruz Sánchez-Gómez M et al. Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives. Journal of Autism and Developmental Disorders. 2019 Oct. doi: 10.1007/s10803-019-04253-0

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

Abstract

Fields of science

UN SDGs

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